I am a carer

Caring for someone with dementia can be a very intensive, challenging, rewarding and at times stressful experience. Carers of people with dementia often describe the joys as well as the tribulations of caring for a relative or friend with dementia. Whilst grieving for the losses that dementia inevitably brings, carers also often find a strong appreciation of the person and of the familiar activities, memories and social life that they are still able to enjoy together.

Carers face very different caring challenges at each stage of the illness. Adjusting to the diagnosis and coping with the changes the illness will bring can cause a great deal of stress, but if you are well prepared and know what you may need to provide in the way of care it can help a great deal. Having a good network of family and friends who know how they can help you is also very important.

Alzheimer Scotland has a booklet called "Looking after yourself" which was produced with the help of carers. Carers and people with dementia in Scotland can be sent a copy free - phone the 24 hour Dementia Helpline 0808 808 3000, or read and download it from the link below.

Looking after yourself

There are many other ways in which you can help the person and yourself. A useful book which gives advice and tips is called "Coping with Dementia: A Handbook for Carers" produced by NHS Health Scotland. Contact the Dementia Helpline (0808 808 3000) for a free copy, or download free from the link below:

Health Scotland website - Coping with dementia

Find a local carer support group

Make your voice heard - find a local involvement group in your area

Diagnosis:

Getting help from your doctor
About dementia
Treatment
The right to know - sharing the diagnois

Planning for the future:

Money and legal issues
A positive choice - choosing long-stay care for a person with dementia

Getting support to care for a person with dementia:

Index of information for carers
Carer services
Getting help: caring for a person with dementia
Looking after yourself
I'll get by with a little help from my friends
24 hour Dementia Helpline 0808 808 3000
Types of services provided by Alzheimer Scotland
Find your nearest Alzheimer Scotland service

Information about choosing and adjusting to long-term care:

A positive choice - choosing long-stay care for a person with dementia
Letting go without giving up: continuing to care for the person with dementia

Other useful links:

Make a difference - join Alzheimer Scotland
Positive choice - choosing long term care (free from Dementia Helpline 0808 808 3000)
Treatment
DIPEx (Database of Individual Patient Experiences)
Watch or listen to interviews with carers. Organised into topics (e.g. diagnosis, signs and symptoms, treatments), to help you easily find an experience similar to your own on the site.

Information alert list

24 hour Dementia Helpline
Freephone 0808 808 3000
 
Privacy Policy | Disclaimer/exclusion of liability
Alzheimer Scotland - Action on Dementia is a company limited by guarantee, registered in Scotland 149069. Registered Office: 22 Drumsheugh Gardens, Edinburgh EH3 7RN. It is recognised as a charity by the Office of the Scottish Charity Regulator, no. SC022315.

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