There are approximately 90,000 people living with dementia in Scotland.

The experience of the illness is subjective and unique to each individual. Effectively tackling the symptoms of dementia requires a coordinated range of health and social care interventions.

Scottish Health Council - Future Role

Tuesday 17 October 2017

Consultation details

Alzheimer Scotland responded to call evidence by the Scottish Health Council in relation to their consultation on the future of their role in involving people with experience of using health and social care services,

Summary of Response

Alzheimer Scotland agreed that the role of the Scottish Health Council should be extended to include how people experience social care, in addition to its current responsibility for health services. Additionally, we supported the approach proposed, welcoming the focus across the strategic planning of services, not solely when service change is proposed.

 Additionally, we suggested that the primary responsibility for the collation and dissemination of good practice and information should sit with a national body with statutory underpinning, such as the SHC. 

Alzheimer Scotland offered its knowledge and expertise to work with the Scottish Health Council to ensure that people with dementia and their carers were involved in decisions which affected them.

Our response identified some key challenges and barriers often experienced in involving people with dementia and their carers, and sought clarity on future working, including:

  • The inaccessible and complex nature of IJB meetings, with little support for people sitting on the Board or sub-group to ensure they can meaningfully contribute.
  • The need for greater diversity and a more representative balance of people who use services. 
  • We sought clarification about how the SHC's role would fit into existing structures for regulations and improvement work from both statutory and non-statutory organisations (e.g. CoSLA, the Improvement Service, etc.). 
  • We noted that some IJBs are reluctant to work with non-statutory organisations, engaging in a limited way, only on high level and broad policy areas. Additionally, invitations to contribute are often purely consultative in nature, around themes which have already been broadly agreed when there is little scope for changes to be made.

Download the Scottish Health Council Response

Consultation link
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