There are approximately 90,000 people living with dementia in Scotland.

The experience of the illness is subjective and unique to each individual. Effectively tackling the symptoms of dementia requires a coordinated range of health and social care interventions.

National Dementia Carers Action Network

About NDCAN

Alzheimer Scotland’s National Dementia Carers Action Network (NDCAN) are a national campaigning and awareness raising group whose members all have experience of caring for someone with dementia.

The group has a core belief that carers should be an integral part of the planning and implementation of health and social care policy and practice, and that all professionals and organisations should acknowledge carers’ experience and unique knowledge of the people they care for as valuable and equal to that of professionals.

The group has been in existence since 2011, and since then it has carried out a number of important tasks including:

  • Developing training resources for health and social care professionals.
  • Speaking at national and international conferences. 
  • Meeting with Scottish Government Ministers.
  • Responding to the Scottish Government’s consultation on carers legislation.
  • Being part of the development and implementation of Scotland’s National Dementia Strategies.

Download our NDCAN leaflet

For Carers, By Carers:  The NDCAN Resilience Project

In 2016, members of NDCAN took part in a conference on building resilience amongst family carers. They became interested in helping other carers of people with dementia to be more resilient by sharing their knowledge and experiences of what has helped and worked for them.  The group applied for funding, and the Life Changes Trust very kindly supported them to develop a series of eight booklets explaining what has helped carers of people with dementia to get through the day and cope with difficult times.  These booklets offer words of encouragement, tools and tips. They are not professional advice guides. Rather, they are they are the things that have worked for NDCAN’s carers and other carers across Scotland.

To put these booklets together, NDCAN not only drew upon the expertise of their entire membership, they also worked closely with groups of carers all across Scotland.  NDCAN would particularly like to thank those members who worked on its resilience project team: Janette Kean, Myra Lamont, Maggie Muir, Bernard O’Hagan and Lorna Walker.

This work is supported with funding from the Life Changes Trust.  The Trust is funded by the Big Lottery.

View the documents here

  1. For Carers, By Carers
  2. Getting a diagnosis
  3. Looking after yourself
  4. Friends, Family and Community
  5. Working with professionals and services
  6. Moving into a care home or hospital
  7. Spirituality
  8. When problems arise

Want to get involved?

NDCAN are currently looking for new people to get involved. To find out more and to get involved see our information leaflet and membership form.

Download our NDCAN membership form

To find out more about NDCAN, contact our national coordinators on by:

  • Telephone: 0141 410 0100
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