Delivering Fair Dementia Care for People with Advanced Dementia

Right now too many people with advanced dementia are not getting the health care support they need. It is time to make Fair Dementia Care in Scotland a reality.

Dementia: the true cost from Alzheimer Scotland on Vimeo.

The Delivering Fair Dementia Care For People With Advanced Dementia Report

The Fair Dementia Care Commission, established by Alzheimer Scotland, published the 'Delivering Fair Dementia Care For People With Advanced Dementia' report.

The report sets out a firm definition for advanced dementia for the first time. It also identifies the inequality people living with advanced dementia face in terms of access to health care. Through the report the Fair Dementia Care Commission calls for a number of reforms, including equal access to free healthcare for people living with advanced dementia.

People living with advanced dementia are facing £50.9m in care costs every year. This needs to change.

The report sets out the following recommendations:

  • That the Commission definition of advanced dementia is used and implemented in practice
  • That advanced dementia is recognised as a continuum which includes but is not confined to end of life and dying
  • That the Scottish Government commits to recognising that the needs of people with advanced dementia are health care needs and ensure equality of access to appropriate health and nursing care, which is free at the point of delivery 
  • That the Scottish Government commits to investigating the costs of implementing appropriate and free health care for those living, and dying, with advanced dementia 
  • That the Scottish Government, COSLA and Integration Joint Boards commit to ending the current lack of transparency, complexity and variability in current non-residential care charging provisions across Scotland 
  • That the recording of dementia (including advanced dementia) prevalence across all health and social care settings is urgently required to support better understanding of demand, allocation of resources and improved care and support 
  • That all local authorities/health and social care partnerships make local charging policies accessible and readily available The following video clip shares with you the importance of achieving the above recommendations.

The following video clip shares with you the importance of achieving the above recommendations.

Sign-up: Support the Fair Dementia Care campaign

Contact - Fair Dementia Care Campaign

Privacy policy

Privacy statement: Your privacy is important to us. Your information will NOT be passed on to any third parties, unless directly affiliated with Alzheimer Scotland. For more information please see our privacy statement.