Active Voice
Enabling and promoting the diverse voices of people with dementia and carers to campaign for, promote and uphold rights and drive change.
About us
The Active Voice of people living with dementia and their carers is about upholding rights and driving change. We support people with lived experience to help influence and shape policy and practice – Your Voice Matters! You don’t have to be politically minded or need any qualifications to be involved. The only important thing is you know what issues affect you as a person whose life has been affected by dementia.
There are several ways for you to get involved:
- At a local level – One of Alzheimer Scotland’s priorities is local campaigning, because the decisions that most affect the lives of people with dementia, their carers and families are often made locally. Campaigning varies from place to place, but it’s all built on your lived experience.
- National campaigning – If you are a person living with dementia you may be interested in joining the Scottish Dementia Working Group (SDWG), the independent voice of people with dementia within Alzheimer Scotland. The Group is run for, and by, people with dementia.
- If you care for, or previously cared for a person with dementia – our National Dementia Carers Action Network (NDCAN) is a national campaigning and awareness raising group whose members all have experience of caring for someone with dementia.
If you would like further information or an informal chat with a member of the Active Voice Team, please email activevoice@alzscot.org or call us on 0141 410 1171.
You can also learn more by downloading our Active Voice leaflet by clicking the button below.
Our Active Voice groups:

Scottish Dementia Working Group
The Scottish Dementia Working Group (SDWG) is a national, member led campaigning and awareness raising group for people living with a diagnosis of dementia in Scotland.

National Dementia Carers Action Network
Alzheimer Scotland’s National Dementia Carers Action Network (NDCAN) is a national campaigning and awareness raising group for carers (and former carers) of people with dementia who are living in Scotland.
Active Voice Reports
Active Voice Annual Report 2024
Read about the campaigning and awareness raising work of our Active Voice network throughout 2024.
Flash Reports
2025
Empowering future Speech and Language Therapists – an interactive engagement event with students
Centre for Discovery of Brain Sciences visit
Active Voice at Glasgow City College
2024
Active Voice and the Allied Health Professional Community
Active Voice at Alzheimer Europe Conference 2024
Active Voice at Alzheimer Scotland’s Annual Conference
Active Voice summer newsletter 2024
Scottish Dementia Research Consortium Conference – June 2024
The Edie Adams Prize for Excellence in Dementia Information and Support Literature – June 2024
Dementia Awareness Week 2024 Newsletter
Active Voice at Alzheimer’s Disease International Conference 2024
City of Glasgow College Student Awareness Session – May 2024